Members supporting Carol

Shara

Shara
Cancer Type: Nasopharyngeal Cancer
Stage of Cancer: Stage 4 cancer
Medical Term for the Type of Cancer: Nonkeratinizing squamous cell
Nasopharyngeal Cancer Symptoms: Fullness in right ear, sinus headaches, tingling and numbness in upper right lip and cheek area near the nose, right side of tongue and right side of roof of mouth sensitive to salty and acidic foods
Chemotherapy Description, Dates & Side Effects: Started weekly induction chemo on 9/5/13 with carboplatin and paclitaxel- soreness in mouth, slight nausea, dry skin (severe itching), acid reflux. Started chemo-radiation on 11/4/13 using cisplatin. Received 5 weekly cisplatin treatments until wbc count was too low.

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Merrill

Merrill
Bio: I was diagnosed with Stage 3A anal cancer in September 2008, caused by HPV. I'm an artist and museum director (day job). I have a remarkable husband, who supports both my spirit and my flesh. My cancer journey continues to be supported by my medical team at Jefferson University Hospital in Philadelphia. I also credit several dear friends for their…more
Cancer Type: Anal Cancer
Stage of Cancer: Stage 3A cancer
Anal Cancer Symptoms: Rectal pain and bleeding. Told it was a hemorrhoid. Fortunately, I kept demanding to see the doctor.
Surgery Description, Dates & Side Effects: A chemo port was surgically installed just under my collar bone. After I completed 2 rounds of chemo and 7 weeks of radiation, my tumor was much smaller but still there. I switched hospitals from Jefferson Univ. in Phila. to Sloan Kettering in NYC. To determine if the remaining tumor was still cancerous, I had a surgical biopsy, going into…more
Chemotherapy Description, Dates & Side Effects: The standard for anal cancer: two rounds of 5FU & Mitomycin. Lost about half my hair. Very bad mouth sores and oral thrush, especially in the 10 days after infusions. Became neutropenic (big drop in the type of white blood cells that are the major infection fighters) with second round of Mitomycin.

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Richard

Richard
Bio: 68 year old veteran, gay with 2 dachshunds living in Los Angeles. celi-bracy(celebrating my celibacy) for the last 13 years. always stayed fit and felt as if I was taking care of my body quite well..... this just goes to show that in this journey we call "life"... nature/nuture have their own will and power over our body...all we can…more
Cancer Type: Anal Cancer
Stage of Cancer: Stage 2 cancer
Medical Term for the Type of Cancer: squamous cell carcionoma
Anal Cancer Symptoms: a week after having completed my PSA and urine tests(5/22/18), i noticed blood in the toilet and completed the F.I.T--fecal immunochemical test.... I forgot to mail it in and drove to the VA and had them give me another one, did it and that afternoon i returned it...two days later i received a call to schedule a…more
Chemotherapy Description, Dates & Side Effects: AM NOT USING THE 5-FU....INSTEAD ITS CAPECITABINE 500MG

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Sandy

Sandy
Cancer Type: Breast Cancer
Breast Cancer Symptoms: I found a lump in my left breast, had mastitis for years & had no insurance, so let it go. But it got too big. Went to doctor.
Surgery Description, Dates & Side Effects: Went to surg.first & in 1 week I came out of surgery. Quickest thing I have ever heard of. Fla. Drs. don't waste time.
Chemotherapy Description, Dates & Side Effects: 6 months.... 3 at first.... then 3 more after radiation..most side effects there are!!!couldn't eat,sick,cried,tired, you name it....lost my hair, then lost it the 2nd time too,3 months later
Death Date: October 15, 2019
Visit Sandy's Memorial

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Michele

Michele
Bio: My name is Michele and I was diagnosed with Stage 4 Anal Cancer in February 2010. I asked my OB-Gyn doctor to check what I thought was a hemorrhoid flare up at my routine pap smear visit, and discovered it was actually 2 tumors. My constant sciatica was found to be caused by a golf ball sized tumor growing out…more
Cancer Type: Anal Cancer
Stage of Cancer: Stage 4 cancer
Medical Term for the Type of Cancer: Squamous Cell Carcinoma of the anus
Anal Cancer Symptoms: Rectal bleeding, itching, sciatic pain. (thought my hemorhoid was acting up)
Surgery Description, Dates & Side Effects: Laminectomy and tumor removal of the metestatic sacral tumor. This was done microscopically (with a small spoon). Nov 2012 Wedge resection right lower lobe via thoracotomy.
Chemotherapy Description, Dates & Side Effects: 2 rounds, 96 hours each week 1 and week 5 during radiation of 5-FU. Mytomycin-C first round only. Hairloss, nausea, vomiting, 30 pounds of weight loss. Recurrence 2013- 4 rounds of Cisplatin with 46 hours of 5-FU with each round.

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Danean

Danean
Bio: My name is Danean (rhymes with “machine”) and I was diagnosed with rectal adenocarcinoma in August of 2009 at the ripe old age of 41. I had a transanal resection October 5th, radiation five days a week for five and a half weeks from November 16th through January 5th, and took Xeloda until my platelet count fell so low that my…more
Cancer Type: Colon and Rectal Cancer
Stage of Cancer: Stage 2 cancer
Medical Term for the Type of Cancer: Rectal Adenocarcinoma
Colon and Rectal Cancer Symptoms: Rectal bleeding that my gynecologist said was “probably hemorrhoids,” lower back ache, occasional diarrhea.
Surgery Description, Dates & Side Effects: Transanal resection, October 5th, 2009.
Chemotherapy Description, Dates & Side Effects: Xeloda (oral chemo) for two and a half weeks. I was supposed to have it for five weeks, but my platelet counts wouldn't stay up. I was diagnosed with Chronic ITP (an auto-immune platelet disease) shortly after I finished treatment.

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Wendy

Wendy
Bio: I am 58 years old, married to the most wonderful man in the world. I am a Real Estate Broker, Certified Negotiation Expert, Real Estate Investor, and Notary Signing Agent. I was diagnosed with anal cancer on 12/2/2018 after having blood in poo for probably 2 years. I "assumed" my hemorrhoids were back and I wasn't going to…more
Cancer Type: Anal Cancer
Stage of Cancer: Stage 3A cancer
Medical Term for the Type of Cancer: Anal Cancer Stage 3A - Squamous Cell Carcinoma
Anal Cancer Symptoms: Blood in poo for a couple of years. Assumed it was hemorrhoids. Didn't want to deal with it as I had surgery for that years ago and spent a week in the hospital. Very painful recovery. When the blood started squirting out before pee or poo... I figured there was a problem.
Chemotherapy Description, Dates & Side Effects: Chemo didn't affect me too much. Got some weird tastes in my mouth. My hair thinned a lot. Used to love beer, now I don't have a taste for it. I have a constant smell in my nose like some kind of burnt food.

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Thomas

Thomas
Bio: I was a Queensland dog with osteosarcoma. I'm here to support my human friends
Cancer Type: Bone Cancer
Stage of Cancer: Stage 4 cancer
Medical Term for the Type of Cancer: Osteosarcoma
Bone Cancer Symptoms: Swelling above left carpal, limping. My vet had just lost her dog to osteosarcoma so took no chances - straight in for an xray, which suggested it could be bone cancer, so immediately referred to a Jindalee Vet Oncologist (Dr Terry) who took bone biopsies and did body scan. Scan showed no spread of cancer. Results received 16 April 2018…more
Surgery Description, Dates & Side Effects: Left front leg and shoulder amputated on 17 April 2018.
Chemotherapy Description, Dates & Side Effects: Carboplatin, Doxorubicin, Cyclophosphamide, Tamoxifen, Toceranib, Piroxicam. No significant side effects to start with but after so many months of home chemo/meds I get diarrhoea and occasional nausea (am on meds to combat). My fur is very slow growing now - months later, surgery sites are still sparsely covered in fur, and I now have bald patches (my paws, muzzle, bottom).

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Laurie

Laurie
Bio: I was diagnosed with cancer Dec. 2008. I thought I just was going thru the change of life. I also never went to the doctor and tried to hide what was going on. My cousin finally dragged me to the gynecologist. I owe her my life :)
Cancer Type: Endometrial-Uterine Cancer
Stage of Cancer: Stage 2 cancer
Endometrial-Uterine Cancer Symptoms: bleeding, clots, cramps, anemic.
Surgery Description, Dates & Side Effects: total Hysterectomy

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Cindy

Cindy
Cancer Type: Anal Cancer
Stage of Cancer: Stage 3B cancer
Medical Term for the Type of Cancer: Anal cancer squamous cell
Anal Cancer Symptoms: Anal skin tag...burning..itching...cramps....constipation ....tired
Surgery Description, Dates & Side Effects: Two groin nodes removed July 2, 2012 Anal skin tag removed Aug, 2012
Chemotherapy Description, Dates & Side Effects: Starting Aug 27th 5FU and Mito C

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Vital Info

Posts

February 24, 2011

Sierra Vista, Arizona

July 20, 1962

Cancer Info

Anal Cancer

squamous cell carcinoma of the anus

February 23, 2011

Stage 2

2.1 - 3.0 cm

Negative

Negative

No

No

Difficulty going to the bathroom; telling my kids. Worrying about how to pay for tx. Seeing all the young people here. Chronic stool incontinence..which keeps me from participating in certain exercises and, definately, avoiding group outings.

REALLY be a support for others/fight for my kids

Prayer, listen, feedback.

Orange Juice! (I craved it); steak; homemade vanilla pudding.

Patience, an ear, chocolate . . .

Western Washington Oncology 2011-2012. Switched to VA in 2013, to save $$.

If you have a choice, get a port. Exercise through treatment, if possible. It helps.

Take every day head on. Prayer, whatever, too.

May 19, 2011

October, 2011

No, as of 09/24/2017. However, a sigmoid polyp--1st one, was discovered and removed 06/2015.

Chronological order: Blood-tinged drainage for months, then heavy bleeding with BMs-which I "hoped", for months, would go away. A hard skin tag, change in stool appearance, increased difficulty defecating. PAIN!

I give to various charities: St. Jude's Children's Hospital and Ronald McDonald house,cancer charities; multiple fund-raisers. I am too tired and lazy to organize a fund-raiser. Mostly, my emotions are shot. Gone. Just...gone.

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